Spring fever
We have good days! It feels like the weather helps her mood. She’s been pretty happy, talkative (not making sense mind you), and pretty active. I had to lead her inside from the backyard multiple times, trying to prevent her from getting sunburn. Her appetite is good. Still not hydrating well. She is forgetting how to eat. Spoons and straws are way too confusing. Sometimes she tries to suck on sandwiches, bananas, or cookies. And getting a pill down is hit or miss. Sometimes she chews them, mostly spits it out, if I can get the pill inside the straw of a protein shake, its the best odds.
We have been getting out on the bikes any good day we can. Its been pretty nice weather lately. Working on fertilizing the garden with all our winter compost. Attempting to grow some plants from seed. Athough I found the best local greenhouse. Egans
Shes not sure how clothing works anymore. I found her outside in the yard on Saturday with four top layers on. She put a sweater over her jacket, which was over another sweater and t-shirt. Overheating is another fear I have. That or freezing. Last night it dropped to 19 degrees, and when I checked her room right before bed and she had her screen door wide open. We had it shut it closed with a dowel for the winter. But I took the dowel out due to the warmer weather. Luckily we have plenty of checks in place to keep her safe. The cameras and temperature sensors have been invaluable. I’ve been thinking another camara outside may be necessary…. last weekend she made it outside to the drivers side of my car. With so many people coming and going, its been hard to insure the door is deadbolted. Honestly its probably me. I tend to use the doors a lot on Saturdays. Its hard to lock it with full hands, yard tools, groceries and garbage. Anyways, I let her sit in the car for 5 minutes then walked out opened the car door, and exclaimed “you made it! Come on in!” “We made pumpkin pie for you!” Took her hand and got her back inside.
Adventures in Mitchell 
Katie since I am pretty close I have probably a closer insight than others, but I want you to know that your love and devotion to your mom are beyond words. You, Shaun, and the boys have made so many sacrifices for your mom and for me. I Admire you more than you could ever imagine. I’ve seen you on days when you look like you could literally fall into bed to sleep for a month but bounce back up to do something for someone. I know Shaun works to help you as much as possible which is also difficult since if he’s not on the road shooting headshots he’s working on the ones he has already taken at home. You also left out one pretty important hat that you and Shaun wear since you are also home schooling the boys. There’s a special place in heaven, it’s to bad others that could help you don’t, for people like you. I’m so grateful to be on the receiving end of the love your family shares with me and if I ever had to have this horrible disease I would want you in my corner. ❤️🤗
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Thank you so much for the kind words. I’m so grateful for your support and being a shoulder to cry on and ears to vent when things build up. Your love and guidance and help are invaluable. And for the boys to have a loving grandma close by that helps to contrast the grandmother who is unable to be herself means more than you will ever know. ❤ thanks again for your kind words.
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