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Stage 5

Today mom has seemed to take a downturn. She is ruminating on a confabulation regarding the World Trade Center attacks, stemming from a movie she watches. In her story she is a teenager and had taken the elevator to the top multiple times up and down. She talks about leaning  over the edge and seeing the people who looked like ants (which was not a possible feat to do). She was near the bottom of the World Trade Center when she says a bomb went off. I join her conversation talking about where I was and how I was getting David ready for second grade the morning it happened, thinking maybe she would realize that the timelines of her being a teenager and me having a son wouldn’t fit. But that realization is gone to her. So instead I gave her a composition notebook and told her that she should write her stories down. At dinner I frequently ask her to say the prayer, and tonight she was not able to finish without repeating herself, and losing words. It came so automatic before, considering she has been saying prayers all her life. I’m worried what our future holds. She is still independent and has no self reflection capabilities to see her own deficiencies. Right now she is mostly keeping busy in her own way, dressing herself in the morning, ready to go in minutes if we say the word, but sometimes I see the blank look in her eyes. I fear her progressing to the next level.

This was an insightful video, suggested by my Alzheimers and Dementia Support Group…

2 Comments »

  1. So sad to read this about Karen. I watched the whole video you posted, very informative, and very sobering. Have you thought about what you will do when your mom needs more care, as this disease progresses?

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    • I plan to keep her with us until we can’t keep up with her needs. I have been saving as much of her income as possible for her future. Hoping for in home care respite until she may need a SNF or skilled nursing facility. Being a nurse I am pretty aware of her future because of my time spent in nursing homes and mental institutions, but have never had to deal with family firsthand. I had always said I could never subject someone that I love to that environment. But reality is harsh and coming sooner then I like.

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